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emmaperepelkin

Big Win

The last few weeks have been busy, but full of wins! We were gearing up to go on a 10 day camping trip and I was so nervous. Not only about getting Av adjusted to a camping routine, but about myself too. I'm usually a write off after 3 days of stimulation, and the last time we went camping, we went just for one night and I was toast mentally for a week. We're 3 days into this trip now and I feel pretty great actually, even after packing the camper which is a huge job. This vacation has been so nice to just sit in the sun on the lake and just relax. The first couple of nights went well, Av slept really good but the third night at 3:30 in the morning, we woke up to a screaming scortching hot baby. She had a big time fever and was uncomfortable, I felt so so bad! I stripped her down gave her some tylonol and got her back to sleep. This came out of no where, the only thing I can think of is too much sun? She seems to be doing better today though.


On the brain injury side of things; We had a HUGE breakthrough. We got our daughter a remote control side by side, so the parents can control it for her until she gets bigger then she can drive it herself. Boy that took a lot of practice, it was so much work for my brain trying to figure out which button does what and eventually I stopped mixing the buttons up. Also all of my balance board practice with the athletic therapist once a week has paid off. My balance has improved so much to the point where I was able to get going on a paddle board. Starting on my knees and even got myself up on my feet without falling in! It's so weird though because that same day I lost my balance walking on the rocks and ended up walking into my husbands chair so hard I gave myself the worlds biggest and most painful bruise. But other then that I was so proud of my accomplishment, that I decided to do something even bigger... I made the decision to get back on my husbands e-bike. We're camping in New Denver right now so the road is flat and no hills, so I felt a bit better about it. I climbed on and I went, I didn't have the motor turned on just yet ( I'm not mentally ready for that, I feel like my ptsd would be worse then it is ) I actually felt okay about it. Not so much scared, but just impressed with myself for even doing it. I did the little campsite loop and called it a day, by the end of it all I was so exhausted but so happy. I 100000% know I should have worn a helmet, but A) it was SUPER spontaneous, and I decided to live in the moment. And B) I didn't have one here, I was also just peddling and going 3km not 30 haha. but again if I wasn't going to do it in the moment I would have probably never did it anyway. So I have no regrets. The fact that I got on is HUGE, I've also been having epiphanies about getting on it the last little while, so I figured may as well get the elephant out of the room. I don't want to live my life in fear anymore, I want to beable to ride a bike with my daughter one day without being scared. I am so so proud of myself, it was 11 months on the day that I did it. I'm considering this the biggest win of all!


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ep69cv
2023年6月29日

YOU ARE A ROCKSTAR!!!! WE ARE SO PROUD OF YOU AND ALL OF YOUR ACCOMPLISHMENTS ❤️❤️❤️❤️❤️

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